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The Patient Support Working Group (PSWG) is currently led by Liz Atkinson of Cancer Focus Northern Ireland.and supported by Board member Rosin Foster, Chief Executive of Cancer Focus Northern Ireland.

Supporting patients, especially via the Patient Support Working Group (PSWG), is one of the most important areas of work for ECL!

The current working areas for the Patient Support Working Group are:

1. Employment and cancer patients

2. Access to Financial Services

3. Psychosocial Screening and Support

4. Monitoring trends in Palliative Care

 

GUIDELINES FOR HEALTHCARE PROFESSIONALS - how to support and communicate with informal caregivers of persons with cancer (2017)

ECL Caregivers guideline 2017 Page 01

 

Read here the latest article on voluntary work and PSWG, Oct 2017, written by Laila Walther – head of division for Patient Support and Community Activities of the Danish Cancer Society

Laila Walther

 

 

CPH mtg photo

Meeting in Copenhagen, September 2017

 

 

ECL Patient Support Working Group Barcelona 2016

ECL Patient Support Working Group 2016 

 

 

The Patient Support Working Group meets twice a year with regular email and teleconferencing contact in between. For more information about the next meetings and membership please contact the This email address is being protected from spambots. You need JavaScript enabled to view it. (PSWG (at) europeancancerleagues.org)

ECL PSWG
Cancer Patient Information Subgroup
Terms of Reference

The subgroup on Cancer Patient Information (CPI) supports the overall goals of the Patient Support Working Group (PSWG), goals which should be practical, achievable and measurable:

1) lobby the EU on patient support issues, and
2) provide an international platform for knowledge sharing.

The specific aim of this subgroup on Cancer Patient Information is to

contribute to the improvement of cancer information and resources for patients and others concerned with cancer in Europe.

 

The short ECL report on findings from an ECL employment issues questionnaire surveyed over Summer 2009 is available here.

The report found that two main issues brought to the leagues by cancer patients are:

  1. The need for special considerations at the work place when returning to work, and
  2. Acceptance and acknowledgement by both the companies and the legal authorities that a cancer disease can last longer than one year.

The most common response from the leagues is to offer information and advice as well as to use advocacy and lobbying strategies in order to improve conditions for cancer sick employees.

The ECL Patient Support Working Group is currently considering how to use these results in an effort directed at the EU.

We welcome your comments at the This email address is being protected from spambots. You need JavaScript enabled to view it..

The specific aim of this subgroup on Employment and Financial Issues (EFI) is to improve conditions and rights for the cancer patient in the workplace, by evaluating the current climate of cancer patients in order to provide suggestions on supporting cancer patients in the workplace.

The Chair of this Subgroup is provided by the Danish Cancer Society.

The short ECL report on findings from an ECL employment issues questionnaire surveyed over Summer 2009 is available here.

The report found that two main issues brought to the leagues by cancer patients are:

1. The need for special considerations at the work place when returning to work, and
2. Acceptance and acknowledgement by both the companies and the legal authorities that a cancer disease can last longer than one year.

The most common response from the leagues is to offer information and advice as well as to use advocacy and lobbying strategies in order to improve conditions for cancer sick employees.

The ECL Patient Support Working Group is currently considering how to use these results in an effort directed at the EU.

We welcome your comments at the This email address is being protected from spambots. You need JavaScript enabled to view it..

 

Resources related to cancer, employment and financial issues:

At the Continuing Cancer Care Conference, September 7 2011, participants and Members of the European Parliament, pledged to commit to support cancer patients who wish to return to work and to iron out injustices when accessing credit and insurance services.

DECLARATION OF SUPPORT FOR CANCER PATIENTS

We, the undersigned, recognise that cancer patients, survivors and family members who need to take time out to care for patients face specific problems in their places of work and need legal protection of their rights to return to satisfactory employment if they so desire.

And, we the undersigned recognise that cancer patients and survivors are unfairly considered under current legislation, and that the rights of cancer patients to more transparent and fairer access to credit and insurance should be guaranteed.

Read more: Campaign for the Protection of Cancer Patients' rights to return to work and access financial...

  
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