Since 2007 the ECL Patient Support Working Group (PSWG) connects cancer care experts who work together on topics such as access to insurance and financial services, return to work, caregiver support, cancer rehabilitation and palliative care. PSWG members share best practices, develop guidelines and other information sources to raise awareness and improve quality of care, and seek to empower the patient voice in national and European policy-making.
ECL formed the PSWG in 2007 to act as an information source for member leagues and to provide an international platform to share knowledge and advocate on patient support issues at national and EU level. The group meets twice a year, in the Spring and just before the Autumn General Assembly, usually hosted by one of the PSWG member leagues. This allows the group to experience national facilities and differences and to learn from local expertise. The group is working on a number of issues such as return to work, private insurance access, rehabilitation for cancer patients, sexuality issues, caregiver support, use of volunteers for patient support purposes, use of social media and to engage with cancer patients, etc. Being part of this group is stimulating and challenging but also fun. PSWG members get a lot out of the opportunity for collaborating, networking and sharing ideas with each other.
Chair, Patient Support Working Group